Health care transition : building a program for adolescents and young adults with chronic illness and disability [electronic resource]

  • Hergenroeder, Albert C. , Wiemann, Constance M.
  • Springer
  • 2018
Health care transition : building a program for adolescents and young adults with chronic illness and disability [electronic resource]


This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient's disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.

Table of Content

Part I. Introduction
1. Introduction: Historical Perspectives, Current Priorities, and Healthcare Transition Processes, Evidence, and Measurement
Hide Level Part II. The Adolescent and Young Adult: A Developmental Perspective
2. The Anatomical, Hormonal and Neurochemical Changes that Occur During Brain Development in Adolescents and Young Adults
3. The Relationships of Adolescent Behaviours to Adolescent Brain Changes and their Relevance to the Transition of Adolescents and Young Adults with Chronic Illness and Disability
Part III. Personal and Professional Perspectives on Healthcare Transition
4. Healthcare Transition from the AYASHCN’s Perspective
5. Healthcare Transition from the Family Perspective
6. Healthcare Transition from the Pediatric Provider’s Perspective
7. Healthcare Transition from the Adult Provider’s Perspective
8. Healthcare Insurance Changes as Youth Become Young Adults
Part IV. Developing a Healthcare Transition Program
9. Establishing the Administrative Structure and Support for a Healthcare Transition Program
10. Mobilizing Pediatric Providers
11. Developing Transition Policies, Procedures, or Guidelines
12. Establishing a Method to Monitor Transition Planning and Track Patient Outcomes Following Transfer
13. Incorporating Healthcare Transition Readiness Assessment
14. Employing Healthcare Transition Planning Tools
15. Understanding the Pediatric and Adult Healthcare System: Adapting to Change
16. Developing the Process for Transferring Care from Pediatric to Adult Providers
17. Preparing the Adult Practice to Accept Adolescents and Young Adults
18. Establishing a System for Ensuring Transfer Completion
Part V. Defining Successful Transition
19. Defining Successful Transition: Young Adult Perspective
20. Defining Successful Transition: Parent Perspective
21. Defining Successful Transition: Pediatric Provider Perspective
22. Defining Successful Transition: Adult Provider Perspective
23. Defining Successful Transition: Payer Perspective
Part VI. Financing Healthcare Transition
24. Financial Cost of Healthcare Transition
25. Payment for Healthcare Transition Services
Part VII. Special Issues in Healthcare Transition
26. Healthcare Transition and the Medical Home
27. The Hospitalist’s Perspective on Healthcare Transition
28. The International Perspective on Healthcare Transition
29. Expanding the Role of the Pharmacist
30. Legal Issues: Guardianship and Supportive Decision Making
31. Transitioning Adolescents and Young Adults with Medical Complexity
32. Transitioning Youth with Intellectual and Developmental Disabilities
33. Palliative Care in Adolescents and Young Adults with Special Healthcare Needs
34. Healthcare Transitions and Dental Care
Part VIII. Models of Healthcare Transition Programs
35. A Successful Healthcare Transition Program in a Hospital Setting
36. Different Healthcare Transition Models
Part IX. Conclusions
37. Conclusions